CLOSED UNTIL JAN 16th 2021 - Orders placed online will ship when we re-open.
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BEST SELLERS
GOLD - Moonbeam Children's Book Awards |
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WE ARE ON A MISSION TO CURE BLAU SYNDROME
Our daughter Lexi lost her life to an extremely rare genetic disease - Blau syndrome (early onset sarcoidosis). We established the Cure Blau Foundation to fund research to cure this devestating illness. Lexi started a social media campaign to:
1. Find patients and document patient histories in a global registry
2. Get this information to researchers and innovative thinkers
3. Source resources to support this endeavour - donations, fundraising, grants and volunteer support.
Our goal is to establish an endowment that will continue to fund research as long as it is necessary - until a cure is found. Please visit our website to learn more about our stories and how you can support our mission.
Our son, Felix, wrote Don't Floss Your Toes - Advice from a five-year old as a fundraiser for his sister. All proceeds from the sale of this book are donated to the Cure Blau Foundation.
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