BEST SELLERS

GOLD - Moonbeam Children's Book Awards

 WE ARE ON A MISSION TO CURE BLAU SYNDROME

Our daughter Lexi lost her life to an extremely rare genetic disease - Blau syndrome (early onset sarcoidosis). We established the Cure Blau Foundation to fund research to cure this devestating illness. Lexi started a social media campaign to:

1. Find patients and document patient histories in a global registry
2. Get this information to researchers and innovative thinkers
3. Source resources to support this endeavour - donations, fundraising, grants and volunteer support.

Our goal is to establish an endowment that will continue to fund research as long as it is necessary - until a cure is found. Please visit our website to learn more about our stories and how you can support our mission. 

Our son, Felix, wrote Don't Floss Your Toes - Advice from a five-year old as a fundraiser for his sister. All proceeds from the sale of this book are donated to the Cure Blau Foundation.